I have been diagnosed by a few doctors with having Guillain-Barré Syndrome as well as Chronic Inflammatory Demyelinating Polyneuropathy (CIDP). It came as a bit of a surprise because I had never heard of those diseases. When the doctors told me about it in the hospital, I was at a loss. I didn’t know what the heck they were talking about. They explained them to me, but once I was home again, I did research on my own.
Just as a reminder, my feet, legs, and hands are affected. It is hard for me to walk because I can’t feel my feet. I can’t tell where they are. Are they on the floor? Are they pointed in the right way?
I’m managing it so far, but it is tough. I haven’t told anyone how hard it is for me because I don’t want them to worry. On the other hand, I could really use some support. So I am torn.
